FHIR Research – The Jerusalem Center
The Jerusalem Center for Computational personalized medicine in The Hebrew University, The Hadassah University Medical Center, Shaare Zedek Medical Center, Meuhedet HMO, Outburn Ltd.
Distributed data research, joint by three organizations, in the field of obstetrics and high-risk pregnancy.
As part of the research, the data shall be standardized throughout the three organizations, enabling the creation of continuous clinical data derived from multiple and varied sources: prenatal care, diagnosis, and postpartum hospitalizations, from early pregnancy through delivery.
The group’s study case
Distributed data research (federated learning), joint by 3 organizations, on obstetrics and high-risk pregnancy. As part of the research, a standardization is made throughout the three organizations, enabling the creation of continuous clinical varied and structured data (prenatal care, diagnosis, postpartum hospitalization), over the time span, from early pregnancy through delivery.
The current research is the first milestone in the broader project, which is aimed to provide a universal and wider platform for collaborations on further research.
The project’s world of content
High risk pregnancy
Pregnancy and birth
Cross-reference of data for research
Data-intensive research
Distributed databases
longitudinal digital medical record
Mother clinical states which effects the newborn
Solution Architecture
As part of the project, a FHIR server will be established in each and every organization in order to populate data, as the research requires.
Populating the FHIR server in data, will be done using the integration tools of the organization (e.g. ESB or ETL or other designated tools).
Data requirement for any research, activates the anonymization automatic unit (according to the research approved application), and then transfers the data to the control of the federation system which performs the algorithm calculations and shares results with the other organizations in the research.
The results share process activates the federation algorithm again, this time to make changes into the statistical estimations and to accurate the results as a response to the new information received from the partner organizations in the research.
Profiles to be characterized in the project
Patient (Mother, Child)
RelatedPerson (Mother)
Observation (Pregnancy Summary, Pregnancy History, Delivery, Pregnancy Findings, Blood Pressure, Umbilical Cord, Newborn Findings, Newborn Body Weight, Newborn Head Circumference, Lab Result Mother, Lab Result Newborn),
Encounter (Delivery, Pregnancy, Birth),
Condition (Past Mother Diagnostics, Pregnancy Diagnoses, Delivery Diagnoses, Umbilical Cord Complications, Newborn Diagnoses),
Procedure (Delivery, Delivery Procedure, Complication Treatment, Birth, Newborn Complication),
Terminology to be used
SNOMEDCT: http://snomed.info/sct
LOINC: http://loinc.org/
Units of measure: http://unitsofmeasure.org
Identifier type: http://terminology.hl7.org/CodeSystem/v2-0203
·Birth Sex: http://hl7.org/fhir/us/core/ValueSet/birthsex
Encounter status: http://hl7.org/fhir/encounter-status
Parental roles: http://terminology.hl7.org/CodeSystem/v3-RoleCode
Classification of patient encounter : http://terminology.hl7.org/CodeSystem/v3-ActCode
Encounter Location status: http://terminology.hl7.org/CodeSystem/v3-ActCode
Encounter admit source: http://terminology.hl7.org/CodeSystem/admit-source
Type of Service provider: http://terminology.hl7.org/CodeSystem/service-type
Condition clinical status: http://terminology.hl7.org/CodeSystem/condition-clinical
Condition Category Codes: http://terminology.hl7.org/CodeSystem/condition-category
Observation Category Code: http://terminology.hl7.org/CodeSystem/observation-category
Assessment Status: http://terminology.hl7.org/CodeSystem/v3-ObservationInterpretation
Condition Clinical Status: http://terminology.hl7.org/CodeSystem/condition-clinical
Condition Verification Status: http://terminology.hl7.org/CodeSystem/condition-ver-status
JCPM Clinical Category: http://fhir.outburn.co.il/CodeSystem/jcpm-resource-category
Project Status
These days the development of characterization of the FHIR profiles required for the project is carried out facing the partner organizations.